Local councillor calls for roll out of National Haemochromatosis Testing Programme

Aontú Councillor Ellen Troy has called for the implementation of a national testing programme for haemochromatosis in Ireland, highlighting the urgent need for early detection and treatment of this condition.

Haemochromatosis, often referred to as “iron overload disorder,” can lead to serious health complications if left untreated, including liver damage, heart problems, diabetes, and arthritis.

However, early diagnosis through a simple blood test can prevent these outcomes  and significantly improve patients’ quality of life.

Councillor Troy, who herself suffers from haemochromatosis, says that given that Ireland has one of the highest incidences of this genetic disorder in the world, this makes a testing campaign all the more important.

Cllr Troy said:

“I suffered for years without knowing why. I was very tired, lethargic and had many other symptoms.

I had a young family and a busy job as a Bio Chemist, it was all go .

“Once I was tested, I at least had a reason for how I had been feeling and a medical plan and my health improved so much and I have lots of energy.

“Crucially I encouraged my siblings to go and get tested and four of them tested positive also and were able to get the help they needed.

“Genetic testing of family members offers a full picture and enables healthcare providers to manage haemochromatosis in its early stages, reducing the burden of severe complications and improving long-term outcomes.”

Any testing programme would not only test individuals but also extend to relatives of diagnosed patients, offering a comprehensive view of the condition’s prevalence and allowing for early intervention.

“This is an investment in our future. Prevention is always better than cure, and with haemochromatosis, early detection is the key to prevention.

“Ireland’s genetic makeup places its population at a significantly higher risk for haemochromatosis than many other countries, making this programme essential.

“I am urging this government to prioritise funding and resources for a nationwide haemochromatosis testing initiative.

“Not only would it save and improve lives it would also alleviate the long-term pressure on healthcare services which as we all know are creaking under the strain.”