Ice Bucket Challenge drastically raised awareness of MND, research finds

 This year marks the ten-year anniversary of the Ice Bucket Challenge, the viral phenomenon that swept the globe in the latter half of 2014, raising unprecedented awareness and funds for Motor Neurone Disease (MND).

To commemorate this milestone, the Irish Motor Neurone Disease Association (IMNDA) partnered with iReach to conduct new research exploring the lasting impact of the Ice Bucket Challenge on public awareness of MND in Ireland.

The survey asked 1,000 participants across Ireland in August 2024 what they knew about the disease.

The findings showed high levels of recollection as well as increased awareness of the disease, but also that a significant number of people have a connection to MND:

• 94% of people remember the Ice Bucket Challenge, illustrating the profound effect it had, even ten years later.
• More than half of respondents either participated in the challenge or donated to the cause, reflecting the broad engagement and support the campaign garnered.
• Almost half (48%) say their awareness of MND increased as a direct result of the Ice Bucket Challenge.
• 41% of respondents are now more aware of the IMNDA than they were a decade ago.

Commenting on the research, IMNDA CEO Kevin Burn said:

“The Ice Bucket Challenge was a watershed moment in our efforts to raise awareness of Motor Neurone Disease. The fact that 94% of people still remember it a decade later shows the profound impact it had. This challenge not only increased awareness but also connected communities across the globe in support of those living with MND. We are incredibly grateful to everyone who participated, donated, and helped spread the word. The awareness and funds generated supported the vital services we provide to individuals and families affected by this devastating disease. Lots done but still much more to do in the fight against MND.”

The IMNDA continues to provide vital services to individuals and families affected by MND. These services include specialised equipment loans, home visits by MND nurses, and access to support groups and counselling, all aimed at improving the quality of life for those living with the disease and their caregivers and families.

To learn more about MND and the services provided by the IMNDA, please visit www.imnda.ie.

More than 85% of the IMNDA’s funding comes from fundraising. Text MND4 to 50300 to make a donation of €4 and help the IMNDA continue to support people living with MND in Ireland and their families.