Epilepsy Ireland has appealed to Dublin parents and caregivers to learn more about a rare type of epilepsy which can have a devastating impact on a child’s developing brain.
Infantile Spasms (IS) is a type of epilepsy that can present in children within their first two years of life. The seizures associated with IS are extremely subtle and can often be misdiagnosed for other conditions such as colic, reflux or startle reflex.
Explaining the importance of swift action and being aware of IS, Epilepsy Ireland Advocacy & Communications Manager, Paddy McGeoghegan said:
“Infantile Spasms are characterised by repetitive but often subtle movements such as jerking of the mid-section, dropping of the head, raising of the arms, or wide-eyed blinks. If overlooked and left undiagnosed and untreated, Infantile Spasms can cause permanent damage to a child’s developing brain. Recognising the signs and seeking immediate medical attention can significantly improve outcomes for affected children.”
Epilepsy Ireland have made their appeal as part of the global Infantile Spasms Awareness Week campaign, which takes place from the 1st – 7th December. The organisation is a member of the Infantile Spasms Awareness Network – a group of organisations from across the world committed to raising awareness of Infantile Spasms. Alongside other organisations across the world, Epilepsy Ireland will be promoting the key word of STOP as part of their activities for the week.
“We are urging everyone – particularly new and expectant parents, as well as Healthcare professionals – to be aware of Infantile Spasms and the key word of STOP:
- See the signs
- Take a video
- Obtain diagnosis
- Prioritise treatment
“Early detection and treatment of Infantile Spasms can change lives for children and their families so please take a moment to learn more about the disorder this week. Together, we can improve outcomes for children affected by Infantile Spasms and knowledge is the first step to making a difference.”
For more information on how to recognise Infantile Spasms and to read about the experiences of families who have been affected, please visit www.epilepsy.ie.